PKD App

Clear guidance for people with ADPKD — right from day one.
The free, PIF TICK-certified PKD App gives patients trusted information, practical advice, and signposting to support. By sharing it, your organisation helps people feel reassured and informed - while reducing unnecessary demand on renal teams.
Why this matters.
- A new ADPKD diagnosis can feel overwhelming.
- People need clear answers about health, family, and the future.
- Online advice is often unsafe or confusing - and staff don’t always have time to cover everything in detail.
The result? Patients leave appointments with unanswered questions, while staff face repeated queries and avoidable demand.
What the app offers.
- Understand ADPKD - symptoms, causes, inheritance, and progression.
- Manage everyday life - diet, exercise, work, and family.
- Find trusted support - charities, renal teams, peer groups, and helplines.
- Support for families - genetic counselling, caring, and guidance for children and partners.
- Always accessible - free, private, offline use, no sign-up, no data collection.
Why NHS and opther organsations use the app.
- Support patients effectively - with reliable, up-to-date education.
- Ease service demand - reduce repeated questions and unnecessary appointments.
- Promote consistency - one trusted source, co-created with patient organisations.
- Strengthen your offer - by connecting people to the right services.
Make it local. Make it yours.
NHS Trusts, renal networks, and charities can add:
- A branded homepage
- Local signposting and service directories
- Tailored messaging for your community
A simple, effective way to improve patient support and reduce unmet need.
Localise apps for your organisation
Trusted and co-created.
- Certified with the PIF TICK — UK’s trusted health information mark.
- Co-created by Expert Self Care and the PKD Charity, with partners including Kidney Care UK, Kidney Research UK, UK Kidney Association, and others.
- Funded by the National Lottery Community Fund.
Let's start a conversation.
Help people with ADPKD feel informed and supported from the very start - while giving your staff more time to focus on care.
Arrange a friendly quick chat today